I’m very grateful to The Polyphony for serialising my essay on being diagnosed and living with multiple sclerosis. I much prefer writing fiction, but over the last three years I’ve had to push the boundaries of my comfort zone and write four non-fiction essays as part of my doctoral project on the relationship between objectContinue reading “Illness: A Narrative in Four Parts, Parts Three and Four”
Category Archives: Multiple Sclerosis
Illness: A Narrative in Four Parts, Part Two
My four-part hybrid essay is a piece of memoir that explores my experience of being diagnosed with, and living with, multiple sclerosis. In part two: I’m moved from the emergency receiving unit to the skin ward (because there’s a bed in the skin ward); I have to break bad news to loved ones; I spendContinue reading “Illness: A Narrative in Four Parts, Part Two”
Illness: A Narrative in Four Parts
I’m a fiction writer. It’s what makes me happy. But sometimes I write fact. A case in point is an essay I’ve written for my doctoral project entitled Illness: A Narrative in Four Parts. My essay is being serialised this week in the brilliant medical humanities journal, The Polyphony. If you’re interested in following along,Continue reading “Illness: A Narrative in Four Parts”
Filling the Days
A friend sent me a message yesterday to ask if I could offer any tips on “the craft of keeping to a routine and filling your days whilst maintaining good well-being in all its forms” during this difficult time. I presume her reason for asking me is that in March 2007 I found myself inContinue reading “Filling the Days”
National Poetry Day
When I was first diagnosed, I found that writing poetry (in the loosest sense of the word) was a useful way to process some of the strange stuff that happens when you have a disease munching on your brain and spine. After a couple of years I stopped as the stories I wanted to tell beganContinue reading “National Poetry Day”
A Letter A Day… Y
This is day 32 of ‘A Letter A Day’. The last day. It therefore seems fitting that I end on the first letter I received (although, when I chose to post the letters alphabetically I hadn’t joined those dots, so it’s merely serendipity). This letter is anonymous and if you click on the link below, I hope you’ll agreeContinue reading “A Letter A Day… Y”
A Letter A Day… Travis
Today’s letter is from Travis who was diagnosed with MS at the age of 33. Please read his powerful diagnosis story by clicking on the link below. Travis’s letter
A Letter A Day… Sue
Since her diagnosis with MS sixteen years ago, Sue has become actively involved with the MS Society’s Research Network, working with the media and representing patients’ views on progress in MS research. Please click on the link below to read her powerful diagnosis story. Sue’s letter
A Letter A Day… Steve
With only three days left of ‘A Letter A Day’, it’s my privilege to post Steve’s letter. He was diagnosed with MS nine years after his wife, Caroline, had received the same diagnosis. Please click on the link below to read his diagnosis story. Steve’s letter
A Letter A Day… Sandy
It’s the end of week four and today I’m posting a letter from Sandy. In it, he writes, ‘I was 32 and thought my world was over. It wasn’t; it was simply a new beginning.’ Please click on the link below to read the rest of his diagnosis story. Sandy’s letter
